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One Child’s Story
Born with hydrocephalus in 2000, Zachary was subsequently diagnosed with septo-optic dysplasia, hypopituitarism and optic nerve hypoplasia. More…
Our Mission
Inspired by the love and generosity of our supporters, we strive to give a voice to all children with optic nerve hypoplasia and hydrocephalus. We will educate and inform others about these disorders. We will support research efforts to benefit children with optic nerve hypoplasia and hydrocephalus. Our mission will be accomplished with the highest level of integrity and commitment.
Help Us with Ongoing Research
- Factors involved in formation of OHN study currently being conducted by Dr. Mark Borchert, CHLA. This survey is being used to gather information on how cases of optic nerve hypoplasia (ONH) are spread across the United States and to determine if there are unique distributions of this disease. More…
Our Partners
Support Our Sponsoring Merchants…
OSV Fundraisers
9th Annual Golf Outing
Sunday, June 7, 2009, Sugar Creek Golf Course in Villa Park, IL. Nine holes of golf and luncheon. More…
OSV regrets the cancellation of the 2009 Open Toe Shoe Party but urges our friends to continue to join us in helping fund ONH research. More…
8th Annual 5K Walk and 3rd Annual 5K Run is coming Sunday, September 27, 2009 in Elmhurst, IL. More…
1st Annual These Boots Are Made for Walking Luncheon and Contest is coming in November at Stuart Cellers in Temecula, CA. More…
Science Developments
Visit the Vision Center
Dr. Mark Borchert and the Vision Center at Childrens Hospital Los Angeles have a new website. More…
OSV Foundation News
One Small Voice Foundation Announces Launch of Young Associates Board
Lauren Krzystofiak, newly-elected Young Associates Board Co-President says, “I am very optimistic that the Young Associates Board will sponsor exciting events to raise money for ONH and Hydrocephalus research. We are really looking forward to the upcoming events…” More…
