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One Child’s Story
Born with hydrocephalus in 2000, Zachary was subsequently diagnosed with septo-optic dysplasia, hypopituitarism and optic nerve hypoplasia. More…
Our Mission
Inspired by the love and generosity of our supporters, we strive to give a voice to all children with optic nerve hypoplasia and hydrocephalus. We will educate and inform others about these disorders. We will support research efforts to benefit children with optic nerve hypoplasia and hydrocephalus. Our mission will be accomplished with the highest level of integrity and commitment.
Take the Plunge!
Brave the icy waters of the Lower Fox River with other fearless costume-clad friends and support a good cause at the same time!
- View the Flyer
- Registration Form
Sign Up NOW!
Kid Rock Foundation Awards Chicago Concert to OSV...and more!
November, 2011
At the suggestion of friends at TheMIX 101.9 radio station, OSV entered a contest that would later find
them the winners & beneficiaries of a ... [more]
Help Us with Ongoing Research
- Factors involved in formation of ONH study currently being conducted by Dr. Mark Borchert, CHLA. This survey is being used to gather information on how cases of optic nerve hypoplasia (ONH) are spread across the United States and to determine if there are unique distributions of this disease. More…
Support Our Sponsoring Merchants…
OSV Fundraisers
** Breaking News **
Open Toe Shoe Party!
Be part of the event
You are invited to bid on amazing items. Click on this link and make your bid now. Bidding ends 4:00 pm Sunday.You Are Invited...
Shade Hotel1221 North Valley Drive
Manhattan Beach, California 90266
Sunday, April 14, 2013
1:00 to 2:00 pm VIP Reception
2:00 to 5:00 pm
Please join us for an afternoon of hors d'oeuvres and specialty drinks, including a fabulous Mimosa bar for VIP attendees!
Wear your best open toe shoes combined with a pedicure from your favorite salon and spa. All guests are invited to join the contest.
A celebrity judge panel will determine who has the best open toe shoe look for Spring 2013. Contestants will be judged on style, grace and overall best look for Spring.
This event supports on-going pediatric research on Optic Nerve Hypoplasia at The Vison Center, Children's Hospital Los Angeles being conducted by the the research team led by Dr. Mark Borchert. 100% of the proceeds will go to Children's Hospital Los Angeles.
Thank you all in advance for your support!
p.s. please contact Kevin Katzbeck if interested in corporate sponsorship and/or silent auction opportunities 630-842-6400.
Science Developments
Visit the Vision Center
Dr. Mark Borchert and the Vision Center at Childrens Hospital Los Angeles have a new website. More…
OSV Foundation News
One Small Voice Foundation Announces Launch of Young Associates Board
Lauren Krzystofiak, newly-elected Young Associates Board Co-President says, “I am very optimistic that the Young Associates Board will sponsor exciting events to raise money for ONH and Hydrocephalus research. We are really looking forward to the upcoming events…” More…
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