One Small Voice Foundation, home
Funding research for optic nerve hypoplasia & hydrocephalus

What’s New

Upcoming Events:

 

Dr. Borchert’s Office Responds to Stem Cells China

From the ONH Research Program at Childrens Hospital Los Angeles. See News, Notes and Updates.

Journal of Pediatrics Paper Published

The Journal of Pediatrics has given us permission to post a 2006 paper on endocrine abnormalites related to OHN written by Tariq Ahmad, MD, Pamela Garcia-Filion, MPH, Mark Borchert, MD, Francine Kaufman, MD, Linda Burkett, RN, MSN, CDE, and Mitchell Geffner, MD. See News, Notes and Updates.

ONH Guide for Parents Now Available in Spanish

Una descripción de diagnóstico general en español: Hipoplasia del Nervio Óptico: Guía Para Los Padres (PDF).

Translated from Optic Nerve Hypoplasia: A Guide for Parents (PDF), written by Dr. Francine Kaufman, Dr Neal Kaufman, Dr. Mark Borchert and Talia Inlender.

Research Update

On hydrocephalus initiatives at Chicago’s Children’s Memorial Hospital.

HSM OTSP Donation Praised

HSM Electronic Protection Services’ sponsorship and $15,000 donation, April 29 at OSV’s Open Toe Shoe Party in Santa Monica, is named Good Deed of the Week by SecurityInfoWatch.com. More…

Complications of ONH Make Early Diagnosis Critical

A new article by Dr. Mark S. Borchert, published in the May 2006 edition of AAP News (reprinted with permission).

2006 Annual Appeal

Read our annual letter detailing our thanks for your support and our dreams for the future.

Updates from the Front Lines

Reports from Children’s Memorial Chicago, Childrens Hospital Los Angeles and the Hydrocephalus Association.

New Ways to Help OSV

Love is Blind Note Cards

The amazing Love is Blind artworks have been transformed into note cards that you can purchase! The cards are $10.00 per package plus shipping. To order, please call Debbie Katzbeck at 630-620-6637 or e-mail onesmallvoice@earthlink.net.

United Way Donations

Did you know your corporate donations to United Way can be designated to the One Small Voice Foundation? Simply file the appropriate paperwork when signing up for United Way, and these donations can further help children afflicted with hydrocephalus and optic nerve hypoplasia. For additional information, please call Debbie Katzbeck at 630-620-6637.

Attention Kohl’s Shoppers!

When you purchase a Kohl’s gift card from OSV, 5% of your purchase goes to the Foundation; it’s a great idea for last-minute presents or shopping! To purchase a card, call Cathy Baker at 630-739-5297 or stop by The Spice Merchant and Tea Room at 108 W. Park Blvd, Elmhurst, 630-941-7288.

OSV on Video

Enjoy videos of our recent Open Toe Shoe Party in Los Angeles and a special documentary on the Love is Blind project. Videos require QuickTime 6.5.

OHN in the News

View a video clip of one family’s OHN story in “Lessons from Jack,” a March 15 news report provided courtesy of Los Angeles’ KTTV Channel 11. Requires QuickTime 6.5.

Survey Request

Dr. Mark Borchert of Childrens Hospital Los Angeles is requesting participants in a survey of ONH distribution. Please participate if you are able.

Love is Blind

The Love is Blind gallery exhibit and auction at Around the Coyote Gallery in Chicago’s Bucktown neighborhood on May 21 was a great event. Featuring the inspiring artwork of eleven visually impaired and blind students and their companions from Farnsworth School in Jefferson Park, the project will continue with the students’ art traveling on a “Love Tour” to children’s hospitals nationwide. Watch the start of the project in a short film directed by Karen Carter.

More on the Love is Blind project…

Record-Breaking Generosity!

OSV has broken the $100,000 mark in donations received and disbursed! Read our fiscal year Disbursements Report, along with letters of thanks from the organizations we support.

Thank You, 101.9 The Mix!

OSV extends a special thank you to 101.9 FM The Mix radio station in Chicago. We are proud to have Eric, Kathy, Melissa, Swany, Barry, MaryEllen and the Big Karwowski as friends of the Foundation and Children’s Memorial in Chicago. In 2005, we were blessed to be the recipients of The Mix’s annual CD box set proceeds, to have their support doing PSAs for all of our events, and to have the Road Crew at our 5K walk. The Mix is family to the One Small Voice Foundation, and we thank you for all of your support to us and to the Children’s Memorial Hospital Radiothon. We love you and you are all amazing!

Eric and Kathy flanking the Katzbecks
Eric Ferguson (l.) and Kathy Hart (r.), of The Eric & Kathy Show, flank Kevin, Zachary, Debbie and Benjamin Katzbeck at the Radiothon.

If you missed them on the radio, click the links below to hear clips of Debbie, Kevin, Zachary and Benjamin broadcast during the Children’s Memorial Hospital Radiothon on August 13 and 14, 2004.

Did you see Zak and his mom on TV? We’ve got a QuickTime™ clip of their March 28, 2002 interview on WGN’s Morning News show. Requires QuickTime 4.

Support OSV with This Enchanting Book

Cover of Zak and LizzieWritten by Ann Malokas and illustrated by Corasue Nicholas, Zak and Lizzie is the heartwarming true story of our son Zachary and a friend’s “rag-mop dog” named Lizzie. We thank Ann, Corasue, ZGraphics, Ltd., TARCO Printing and Lake Book Bindery for donating their time and services to the foundation so that the profits of this book can go directly into research.You can buy Zak and Lizzie directly from One Small Voice for $10.00 plus $4.30 shipping and handling (additional copies will require additional shipping fees). Send your order to One Small Voice Foundation, P.O. Box 644, Elmhurst, Illinois 60126, or if you have questions email us at onesmallvoice@earthlink.net.

Check out the online editions of our newsletters in Acrobat PDF format.